How This Information Is Created & Reviewed
This page explains how content on War Against HS is developed, sourced, and maintained. We believe transparency about our process is essential to the trust you place in this platform.
1. Purpose of This Platform
War Against HS exists to support individuals and families navigating Hidradenitis Suppurativa by providing clear, organized, and accessible information about the condition. HS is a chronic, often misunderstood skin disease that can significantly affect quality of life, and many people struggle to find reliable, plain-language resources at the time of diagnosis and beyond.
This platform was created from a caregiver perspective, combined with ongoing research and learning. It is not a clinical service, a medical practice, or an academic institution. It is an educational resource built by people who understand what it means to search for answers when the medical system does not always provide them quickly or clearly.
Our goal is to reduce the information gap - not to replace the relationship between a patient and their healthcare provider.
2. Medical Disclaimer
Important - Please Read
- •The content on this website is provided for educational and informational purposes only. It does not constitute medical advice, diagnosis, or treatment of any kind.
- •Always consult a licensed healthcare provider - such as a board-certified dermatologist or physician - before making any decisions about your health, treatment, or care.
- •Never disregard or delay seeking professional medical advice because of something you have read on this website.
- •The authors and publishers of this website are not responsible for any actions taken based on the information presented here.
If you are experiencing a medical emergency, please contact emergency services or go to your nearest emergency department immediately. Read our full Medical Disclaimer
3. How Information Is Sourced
Content on War Against HS is developed using publicly available medical and scientific information. Where available, we draw on peer-reviewed research published in medical journals, as well as guidance from reputable health organizations. Sources we commonly reference include:
- The American Academy of Dermatology (AAD) - clinical guidelines and patient resources
- The National Institutes of Health (NIH) - including PubMed and ClinicalTrials.gov
- The Mayo Clinic - patient-facing medical information
- Peer-reviewed journals including the Journal of the American Academy of Dermatology, JAMA Dermatology, and others
- Published clinical trial results and drug approval documentation from the FDA
Important clarification: War Against HS is not affiliated with, endorsed by, or sponsored by any of the organizations listed above. References to these organizations reflect the use of their publicly available information as source material. Content on this site is compiled and interpreted independently for clarity and accessibility.
4. How to Interpret Information on This Site
Hidradenitis Suppurativa varies considerably from person to person. What helps one individual may have no effect - or even a negative effect - on another. The disease presents differently across Hurley stages, body locations, hormonal profiles, and individual immune responses.
No single approach to managing HS works for everyone. Content on this site is written to reflect that variability. When you encounter language such as:
"may help" - indicates that some evidence or patient experience supports this, but results are not universal
"some people report" - reflects patient-reported experiences, not clinical conclusions
"evidence suggests" - indicates research support, but does not mean the evidence is conclusive or universally accepted
"is associated with" - indicates a relationship observed in research, not necessarily a direct cause-and-effect
This language is intentional. It is designed to reflect the genuine state of HS research and patient experience, rather than to overstate certainty where it does not exist.
5. Complementary Approaches
This platform discusses lifestyle strategies, dietary approaches, wound care practices, and supportive therapies that some people with HS find helpful. These are presented as complementary approaches - meaning they may support overall wellbeing alongside medical treatment, not instead of it.
Lifestyle and supportive strategies are not replacements for medical treatment. HS is a chronic inflammatory disease that often requires prescription medication, dermatological care, and in some cases surgical intervention. Any changes to your diet, lifestyle, wound care routine, or supplementation should be discussed with your healthcare provider before implementation.
6. Perspective of This Platform
War Against HS is built from a caregiver and patient advocate perspective. The people behind this platform are not clinicians, researchers, or licensed medical professionals. We are individuals who have lived alongside this disease and who have invested significant time in understanding the research, the patient community, and the gaps in accessible information.
This platform is not a clinical service, a medical practice, or a substitute for professional healthcare. It does not provide personalized medical advice, and it does not have the ability to evaluate your individual health situation.
Medical decisions - including which treatments to pursue, when to seek specialist care, and how to manage symptoms - should always be made in consultation with licensed healthcare professionals who can evaluate your specific circumstances.
7. Ongoing Updates
HS research is an active and evolving field. New clinical trials are underway, new biologics are being studied, and our understanding of the disease's mechanisms continues to develop. Content on this site is reviewed and updated over time as:
- New peer-reviewed research becomes available
- Clinical guidelines are updated by dermatological organizations
- Clarity or accuracy of existing content can be improved
- Feedback from readers identifies errors, outdated information, or gaps
We do not guarantee that all content is current at any given moment. If you are making a health decision, we encourage you to verify information with your healthcare provider and to consult primary sources where possible.
8. Our Commitment
We are committed to the following principles in everything we publish:
Accuracy
We strive to present information that is factually grounded and consistent with current medical understanding. Where uncertainty exists, we say so.
Respectful Language
We write about HS with dignity. We avoid stigmatizing language and recognize that this disease affects people's lives, relationships, and sense of self.
Reducing Stigma
HS is frequently misunderstood and underdiagnosed. We are committed to normalizing open conversation about the condition and supporting those who live with it.
Continuous Improvement
We recognize that no resource is perfect. We welcome feedback and are committed to correcting errors and improving content over time.
We welcome respectful feedback. If you notice something on this site that appears inaccurate, outdated, or unclear, please reach out through our contact page. We take all feedback seriously and will review it carefully.