HS Resources & Tools
Interactive tracking tools, downloadable guides, and practical resources to help you manage HS more effectively.
Downloadable Resources
HS Survival Starter Kit
Flare management guide, wound care basics, diet starter tips, and doctor question sheet.
Includes:
Doctor Appointment Question Sheet
50 questions to ask your dermatologist about HS diagnosis, treatment, and management.
Includes:
HS Caregiver Checklist
A comprehensive guide for caregivers supporting someone with HS.
Includes:
Surgery Recovery Nutrition Guide
Nutritional strategies for optimal healing after HS surgical procedures.
Includes:
HS Flare Tracker
Track your flares over time to identify patterns, triggers, and the effectiveness of treatments. Share your log with your dermatologist at appointments.
Flare Log
No flare entries yet. Click "Log Flare" to start tracking.
Doctor Appointment Questions
Many HS patients feel rushed or overwhelmed at appointments. Use this list to make the most of your time with your dermatologist.
Key Questions to Ask Your Dermatologist
What Hurley stage is my HS currently at?
What treatment options are appropriate for my stage?
Am I a candidate for biologic therapy (adalimumab/secukinumab)?
What are the risks and benefits of surgical excision for my case?
How should I manage pain during flares?
What wound care protocol do you recommend for my lesions?
Are there any clinical trials I might be eligible for?
What lifestyle changes could reduce my flare frequency?
Should I see any other specialists (rheumatologist, pain management)?
How often should I follow up with you?
Find an HS Specialist Near You
HS is frequently misdiagnosed. Seeing a dermatologist or surgeon with specific HS experience can dramatically improve your care. Use the directories below to find a specialist in your area.
How to search effectively
Search for "Hidradenitis Suppurativa specialist" or "HS dermatologist" plus your city or ZIP code. You can also ask your primary care doctor for a referral to a dermatologist who lists HS as a specialty.
What to Look for in an HS Specialist
Use this interactive checklist when evaluating a new dermatologist or specialist. Check off each criterion as you confirm it.
What to Ask When Calling a New Specialist
Support Groups & Online Communities
You are not alone. These communities connect you with others who truly understand life with HS, offering peer support, shared experiences, and practical advice.
r/Hidradenitis on Reddit
One of the most active HS communities online. Members share treatment experiences, flare tips, doctor recommendations, and emotional support around the clock.
DailyStrength HS Group
An online support community where HS patients post journals, share advice, and connect with others navigating the emotional and physical challenges of the disease.
Tip: When joining any online community, look for groups that are moderated, discourage medical misinformation, and have active members for the best experience.
Mental Health Resources
HS takes a significant emotional toll. Depression, anxiety, and social isolation are common among people with HS. These resources can help you find professional support and connect with others who understand.
Therapy Directories
Psychology Today Therapist Finder
Search thousands of licensed therapists by location, insurance, specialty, and cost. Filter for therapists experienced with chronic illness, pain, or dermatological conditions.
Open Path Collective
Affordable therapy for those who cannot access insurance-covered care. Sessions range from $30 to $80. Ideal for HS patients managing high medical costs.
BetterHelp Online Therapy
Connect with a licensed therapist online via text, phone, or video. Convenient for HS patients with mobility limitations or those in flare who cannot travel.
Talkspace
Text and video therapy with licensed therapists. Many insurance plans accepted. Offers specialized therapists for chronic illness and body image concerns.
If you are in crisis right now
Call or text 988 (Suicide and Crisis Lifeline) or text HOME to 741741 (Crisis Text Line). You are not alone, and help is available 24/7.
Get the Free HS Survival Starter Kit
Includes: Flare Management Guide · Wound Care Basics · Diet Starter Tips · Doctor Question Sheet
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Connect with people who understand what it means to live with HS.
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